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Robin Huebner, Published February 05 2013

Robin Huebner Reports: Fargo family endures another false alarm, still awaits transplant

FARGO – The family of a Fargo boy awaiting a double-lung transplant in Houston has experienced another roller-coaster ride of emotions from a false alarm.

This time around, however, the no-go happened much later in the process, making it all the more difficult for the family.

Jordan Peterson has cystic fibrosis. As a result, the 10-year-old’s lungs function at only 20 percent at times.

Jordan’s family wrote on his public CaringBridge website they received a call late Monday night that donor lungs became available.

Jordan and his family rushed to Texas Children’s Hospital, where doctors and nurses immediately began prepping him for surgery.

The family wrote the process got as far as having Jordan hooked up to an IV and being rolled into the operating room.

But it turned out the Texas Children’s surgical team tasked with retrieving the lungs was not able to leave from the hospital because of bad weather approaching the city where the donor was located.

The surgical team at the other end harvesting the organs couldn’t wait for the weather to clear.

“He was literally crushed. We all were, but the emotion just poured out of him,” Jordan’s father, Dan Peterson, wrote in a CaringBridge journal entry Tuesday.

Doctors have told Peterson and his wife, Annette, to expect this to happen.

Just a few weeks ago, the family received their first call of a possible donor, but problems arose with oxygen levels in the donor’s lungs.

Jordan is a fourth-grader at Oak Grove Elementary School in Fargo.

His family temporarily relocated to Houston in October to be close to Texas Children’s.

According to its website, Texas Children’s Hospital is one of only two institutions performing more than 10 pediatric lung transplants per year. It says with a median wait time of less than four months, it offers a shorter wait time than most other pediatric programs.

Jordan has officially been on the double-lung transplant list for 3½ months.


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